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A hands-on charity
As well as its role in promoting public awareness of transplantation and organ donation, supporting training and research opportunities for staff, the FHTLA is very much a hands-on charity and is concerned about the welfare and wellbeing of individual patients.
Heart and lung transplant patients and their families know too well what a great challenge the transplant recovery process can be. Patients are often an inpatient for many weeks, if not months, and are frequently a long way from home. Close family members may have to make considerable adjustments to their own lives in order to provide essential care and support for their loved ones who have undergone a transplant.
It can be a very expensive time for families: carers may no longer be being paid by their employer, welfare benefits for patient and carer may have been suspended and the extra expenses of living away from home can be an additional source of stress and anxiety.
“The additional support given to patients and families through the FHTLA is invaluable”
The FHTLA is able to support the work of staff members on the Transplant Unit to provide immediate practical and at times financial assistance, where there is greatest need. All transplant patients are advised and counselled by Transplant Unit staff at the time of assessment for transplant, about the need for careful planning and preparation. However, the challenges and uncertainties of transplant may be huge, and the additional support given to patients and families through the FHTLA is invaluable.
As social workers on the Transplant Unit we are greatly appreciative of the extra support provided by the FHTLA which otherwise would not be available for patients and families.
Jane Meadows and Emma Sowerby
Social Worker, Heart and Lung Transplant Unit.
How we spent your money
From the previous financial year, the following funding has been designated:
- £21,000 – for a secretary to assist in the Transplant Clinic and the Co-ordinators.
- £20,000 – Nice Conference, to enable doctors and nurses to increase their knowledge of new methods used to enhance transplantation.
- £5,000 – Professor Dark Research: Professor John Dark is working in collaboration with a Swedish group, who have developed a “heart storage box” in which they have been experimenting with pig hearts. This has been so successful that Professor Dark has requested one to enable him to carry out testing on human hearts that have been rejected for use in transplantation. This will make the Freeman the second team anywhere in the world to use this box.
- £20,000 – Professor Clark – research into “Tele-coaching”. This is to improve the care of patients after lung transplantation.
- £12,000 – For medical equipment to help lung transplant patients.
In the current financial year, by 31st October, there will be £104,000 donated to various research, equipment and world games (for Freeman participants).
Donate by Post
Please make cheaques payable to Freeman Heart and Lung Transplant Association and send them to the following address:
22 Embleton Avenue
Newcastle Upon Tyne